I drew my OC Bisho wearing my AAC 😁💕
I feel like half my body needs to be soaked in ice while the other half covered in heating pads…just the issues of chronic pain ⋋_⋌
Sometimes I start to wonder if I really am chronically ill. Do I really wake up every day with pain or am I just faking it all the time? I know other people actually have these issues and they are very much real, but to me, I don't know what is real for myself anymore. I try so hard to be normal, yet the pain comes back. It always will come back. I wake in the mornings with a killing pain surging through my jaw. I know that last night I must have been fighting monsters, swinging swords that allow me to defeat these dragons lingering in the mountains. Yet, today as I wake up the pain isn't from a dragon or those monsters I fought, it's from my trying to dislocate once more. The throbbing pain in my head isn't from being flung against the wall of a dragon's den, that pain is from my chronic migraines that linger in me causing it almost impossible to eat and hold my food down. That surging sensation that spirals in my belly, drifting up towards my heart and seeping through my veins isn't the poison of my enemy trying to defeat me at last, this is the anxiety that causes me to isolate myself until everything is fine again. The anxiety that holds me back from chasing these wild imaginations because I'm not okay. I don't think I ever will be okay, but am I really ill?
Hate have say this but
NOT TOUCH OTHER PEOPLE DISABILITY THING PLEASE
Should not even have be please, should be good and know but somehow not.
Person in Aiden class before today *grab* Aiden laptop with AAC and Aiden had *physical* grab back because person start press random button on Aiden AAC.
Then! Person get *mad* because Aiden not want person play with Aiden *voice* like *toy*
This not good, and wish person know more good but guess Aiden have say too.
Hi, I'm sorry if you aren't the best person to ask but i cant find anyone else but is it ablest of me to avoid verbally communicating even if I have the ability?
Like I can talk, and it's not particularly hard for me usually, but I feel more comfortable not doing it usually, especially during the times it does hurt. I'm autistic but I don't know if that's the reason why, and I worry it's inconsiderate to not do it by choice since some people don't have one.
Sorry again
It isn't ableist. I've said it before and I will say it again, everyone deserves a comfortable way to communicate. And for you, if using a way other than oral speech is more comfortable, do that!
You deserve to be comfortable, and if that means using AAC, sign, etc. to communicate even though you are speaking. Do it. Somebody who reblogged one of my posts said this, and I think it applies:
"Its called an aid for a reason. You don't NEED a jacket, but winter will be a lot easier if you have one.".
Also, the more people who use AAC the more normalized and available it'll become!
It is not inappropriate for AAC users to have acsess to swear words.
My peers started swearing at around age 10, and if that is what language the speaking people of that age are using, nonspeaking people have the same right.
Not giving us acsess to the same type of language as our peers feels alienating, it doesn't let us communicate with the same language and terms our peers and friends do. We are not babies. We are not stupid. We are the same as our speaking peers. Just because you can sometimes control what language we use, doesnt mean you should.
So I’ve taken to texting my parents when I want something or just to talk in general, and my dad’s response of “use your words”, and/or “you can talk, use your words with me” makes me even more scared(?) to use an actual AAC app with them.
would like to use my AAC in public but very scared to do so not tell parents about AAC yet scared they will not accept this communication and make me talk all times
like that AAC let me use picture and text also like AAC let me see picture that go with text dont like AAC not showing me where some pictures are on board
(Used default AAC board and not current custom one)
I find not using AAC makes me more likely to use question mark when not sure word makes sense
Probably evidenced(?) by the amount of times I use this “(?)” as well as “(not sure if that makes sense)”and “(if that makes sense)”
I find that using the AAC makes me feel less pressured(?) to have perfect grammar(?) (which I honestly don’t think I need for a tumblr post)
No problem, glad to be of help 😁
Hi weave chat anon here to answer your question on how I got the speech feature to work/work better and it seems that only certain voices, for example I use “Nicky”, only says the words that you need it to say, if you aren’t able to hear it at all, you got to make sure your device is not on silent mode
Sorry this is so long
tysmmm ily Anon/platonic
i am confused about a bunch of people i follow. i thought that they were just emoji blogs? for aac symbols and stuff, but they are all fighting. i don’t understand because people keep saying that one person is bad but then they say they aren’t?
i had to use my aac yesterday after i got into a very minor car accident. my partner was driving the car. it was really shocking and scary. she screamed and yelled and that scared me. i verbally shut down and i still haven’t spoken since then. i think i will be okay though.
yknow what? shoutout to AAC users.
people don't acknowledge those who are nonspeaking/nonverbal and use any form of AAC, but you guys are just as valid as every other disabled individual
i hope your spoons are plentiful and today goes well for you <3 /gen
Плейлисты Soma.fm качеством aac 32kbps решили проблему плохого интернета при потоковом интернет радио.
Качество звучания формата аас даже при 32kbps хорошее.
Формат аас поддерживается плеером mpv.
on tumblr lot more people know about it which great! that improve life of all AAC users. but pretty much with anything disability/developmental disability space on social media (which need certain amount of cognitive/intellectual & language abilities be on even if have support), good majority you see be teen & adult people who already literate learn language via speech n write *first* n then *independently* learn AAC base on it *later*.
especially symbol based AAC, but all AAC, is new system n hard n take long time learn even when you literate & not moderately severely cognitively disabled. but also, “literate teen/adult independent learn AAC” not at all full face of AAC user community.
as in like. experience of theirs. not universal. independently motivated & able to look up different AAC options different AAC apps, compare n contrast. download app n immediately know how to use, or able figure out by self. first time use app n may be clunky n slow, but make sentence on first try. need learn AAC, but most of that learning is for where words are (if button based), how exist as AAC user in public with confidence, etc. those all valid but not true for everyone who need AAC, especially not developmentally disabled children (& some adults) with complex communication needs.
most developmentally disabled children (n some adults) w complex communication needs who need AAC, can’t just hand them tablet with symbol based AAC app or text to speech AAC app n then wait for magic. many of them developmentally delayed in way, not taught in way that fit them (e.g. gestalt language processors), n their language abilities behind peers, so they can’t read, can’t spell, can’t grammar, etc.
some of them need learn where word is not by read word, sometimes not even by understand symbol, by other people press button n hear sound n associate that with meaning n location on AAC n symbol associate with it. in other words, they learning language alongside AAC.
for some their learn process look like, learn how use AAC say one word. n then much later, try make two word message, “want food” “go school.” “two word message” incredibly common goal for many these developmentally disabled children, teens, n even adults, that is something rare n truly extraordinary for that person that need be celebrated.
for others it look like learn by phrase (gestalt), then slowly break it down into smaller phrase n chunks n finally single words.
many of them babble (click random/seemingly random buttons on high tech device, stim with it, etc). but ultimately, won’t be able learn all by self. need be taught, see you accidentally spill water n crying, maybe you “feel” “sad”, n when that happen you “need” “help” from adult. need learn AAC by adults around them constantly model with it, constantly use it in conversation, show them how use. because they learning language along side it.
but also some of them don’t know what this thing in front of them (AAC… device, low tech boards or picture cards, etc) is. don’t know what communication is or you should do that. don’t know people exist who you should communicate to & with. heard many parents n SLP say they try model all time, try all kind of stuff, but child just not seem interested in it, don’t look at it, don’t touch it, don’t use it.
people who use AAC, not all them struggle with only speech. some them struggle with language, with intellectual/cognitive. some of them very developmentally delayed.
n some people, too disabled learn or use AAC. yeah, they exist.
for people who cannot use / cannot only use speech to be understood, AAC can be life changing. but is so much more complex thing. AAC still not as widely used n accepted n properly taught n supported as should, some parents n professionals n schools still many pushback n refuse. but sometimes answer to “have you tried AAC for them” is “yes, but they need long time n lots help to learn n we not very far yet even though spent long time on it” or “yes, but they simply not show interest even after constant model” or “god, wish can, but insurance only cover if show some amount of communication competence n ability use AAC, while only give 1 month trial, which simply not enough time” (wide spread thing that happen) or “yes. many types. it not work.”
for many AAC users & AAC user-to-be, it not as simple as “be handed AAC n check back in while they figure out by self”
"Nonverbal people are communicating, they can use AAC devices!!! The only reason a nonverbal person can't communicate functionally is because the people around them are not trying hard enough!!!"
(Sometimes this statement in some situations is true, but I am talking about when it is not true)
Have you tried using symbol based AAC? Do you know what any AAC apps are called? Do you know there is different types of AAC? Have you even actually looked at the home page of a high tech AAC device?
For someone without impaired communication, I think it would probably take about 1-2 months if not more to fully learn their way around a high tech AAC page set.
Now imagine an illiterate person, a person who has severe fine motor delays, a person who does not understand what people are trying to get them to do when given an AAC device, a person who doesn't understand any language at all, a person who doesn't understand what AAC is or even the concept of communication in the first place, a person with little interest in communication.
Can you imagine that person, handed an AAC device? Do you seriously think they will suddenly starts expressing their thoughts in great detail?
Have you ever talked to someone who used to fit the criteria of being profoundly autistic or someone who's profoundly autistic caregiver? Have you listened to how many hours of therapy a week they have for their communication? Sometimes five hours a week and sometimes even more. Do you know that? Do you know how hard some peoples caregivers try? How much they wish their child could be able to communicate functionally?
How much money they spend on AAC apps? Do you even know how much an AAC device costs? A SGD? Thousands.
Stop calling caregivers lazy when they say their child can't functionally communicate their needs. You have no idea how hard they are trying.