Physically Disabled - Blog Posts

adding on SERVICE ANIMALS! Insurance does not cover them. A few orgs provide them for free, yes, but 1) you have to live in the area they service 2) you still have to pay for travel to and from graduation, and for the upkeep of the dog 3) you have to hope one of these orgs trains the kind of dog you need 4) you have to wait years until you're matched, bc these free programs are the most popular. Money would help immensely.

money is such an underrated accessibility option.

like people want to think any disabled person who is after money is morally suspect some way, because they're not asking for "treatments" or "accommodations" like a lot of our issues can be fixed way more easily with money. can't drive? paying for a taxi is often one of the more accessible alternatives. can't cook? you can pay more to have prepared food delivered to you. food restrictions? that food straight up costs more money. can't clean? you can pay for someone to do that. house inaccessible? having (lots) of money can help with that, you get the gist.

having money won't make us abled. it also won't stop our symptoms from being distressing, painful, or debilitating. but there's a huge gap in experience between the average poor disabled person and someone who's actually wealthy. you can buy your way out of some of the difficult situations most disabled people are left to rot in. wanting money, needing money, asking for money is pretty natural when it's such a useful tool. why get so weird about disabled people wanting money like i'm pretty sure everyone wants money anyway

Person who wants to do stuff trapped in a body that needs to lie down

i used to love jokes about canes/crutches users referring to them as their additional legs. but THIS IS NO JOKE ANYMORE.

i almost feel every step of my cane. my wrist? i feel it's more of like my knee. what do you mean i have two legs? no, i have three. yes, third one starts at my shoulder, why?

oh, i need two free hands for something... *sarcastic thought* yeah let me just pull out my second arm. *realizing i actually do have a second arm* oh well...

sometimes i just don't realize i'm holding a cane. i don't realize i can stop holding it. my fingers are glued to the handle, thanks for asking.

today, i was sitting down and thought that i needed to re-tie my shoe laces. i made knots tighter on first shoe. second shoe. then i got puzzled because where's the third shoe.

yes it IS my third leg now. she's adopted.

I walk and my legs hurt. I sit down too long and my legs hurts. I lay down too long and my legs hurt. What do these things even want from me

*wakes up*

WOW, it is a bad day to have hips!

*stands up and knees and ankles hurt*

*sit down and hips hurt*

”oh you poor thing! Your disability is so sad. How do you keep going?”

haha lol that’s what she said

im in so much pain today and i hate it. i had to cancel going to a halloween event with my roommate and their kid brother bc i cant walk any more today- even with my crutches.

Shouting and screaming and ripping my hair out. I am braver than my pain. I am stronger than my pain. I am more resilient. I won't fall into despair.

The guilt after getting ill is consuming me away. I wish, I was able to change or heal.

When you suddenly realize that you need to do your lessons, but your whole body is hurting and also twitchy and a small activity could turn you into a shaking mess:

Not all seizures are epileptic, and not all non-epileptic seizures are PNES. Hope this helps!

To be honest, after years of searching, trying to find my diagnosis, I just... Stopped caring about this. I even started to like this thing, I know, it harms me, but do I want to treat it? No. It's a part of me, that I like.

When the pain hits THAT hard that you need to work while laying down

The doctors had been neglecting me for more than a year, and the day after yesterday I casually had tremors, though I needed to stand up. It wasn't too hard, though I walked like a soldier, cuz my legs were too stiff. And yesterday and today, I noticed a glue-like feeling in my joints, as if some liquid was there, plus it's SO FUCKING PAINFUL to bend it... It starts to hurt, burn and the glue feeling gets worse.... I don't know what to do... Looks like I ended up damaged due to the malpractice of doctors!

I hate how expensive genetic tests are. Like what do you mean I should pay 1000-2000$ and wait for half a year to get a proper diagnosis? And if only my disease was simple to see on MRI or EEG... This thing is only seen on a few scans and mostly you need to take a genetic test. BUT THEY'RE SO FUCKING EXPENSIVE... Please, someone, buy me this test, and I'll kiss your legs

Am I disabled if I have to be homeschooled because of my chronic illness? Asking out of curiosity.

No. My epilepsy is NOT a disability. Why though? Because it doesn't prevent me from doing ANYTHING. It doesn't affect me all the time. Yeah, someone could say "B-but seizures are a disability!!!" Yeah, they could be. But, have you read the criteria to get disability with epilepsy? No? Okay, I'll list.

– Frequency of seizures. If they are too intense and happening too often (for example a few times per day.)

– Decrease in intelligence.

– Mental issues.

– Impaired ability to move.

– Developmental disorders.

So, that's why epilepsy doesn't make you automatically disabled, it just makes you ill. So, I prefer to use the term "sick, but able-bodied." Instead of disabled. Y'all should accept that disability is a status given by law. So, if you're getting money for your disability, and you have this status in your documents – you're disabled. Or at least if your disease is affecting you most of the time like POTS, fibromyalgia, arthritis etc. you're disabled.

But even if chronically ill means being disabled... I still prefer to be called able-bodied. I'm not disabled. So I don't deserve to be called disabled. Leave space for someone else, not me.

I'm waiting to be hated for my opinion. I don't mind anymore. I don't want to call myself disabled and bury myself in my illness. If I'd be hated for that, but I'd still be able bodied, I don't mind. You can call me like you want, and call yourself a disabled if you have epilepsy, because I'm talking about MY CASE not YOURS.

Thanks for reading. Stay healthy.

The sudden urge to delete all my disability related posts, so people won't see and won't like it, so it won't remind me of being sick>>>>>

To be honest, I feel kinda remorseful for making posts with hashtags like "disabled" and others. Why? Because thinking about my diseases constantly only worsens my mental health. I literally was about to go back to cutting or mutilating my body. Plus, I don't really think that I'm like... Disabled? Like my symptoms aren't enough to be called disabled or something... So, I think that I won't be making posts like this anymore... Or do them rarely. Hope y'all will understand. Thanks for being with me in those times. Take care of yourself.

And yet again nobody cares about my hobbies or how I feel. I'm just an ICD code. Right. Just forgot.

Invisible disability is still a disability. Even if you don't see it.

I want to kill myself because of being disabled. I'm a fucking mess right now. I feel grief, frustration and hopelessness. I wish I could cut myself again.

Trying to dump my sufferings to feel healthy again. I can't bear it anymore.

People's honest reaction when there are MUCH more physical diseases than infections ones or breaking your limb

I'm so fucked up with these diseases thing. Everyone is taking in my disability first instead of my personality. Everyone wants only to discuss my disease instead of my new hobby. Maybe I'm really just a code in ICD... Ehh... Why can't I throw away my feelings and just accept the fact of me being a living movement disorder.

"But my ribs are hurting too, so help me!!" No, you're saying that just to force me to do something you don't, while I just want to curl up in my bed with this stinging pain in my ribs.

"Diagnosis isn't an excuse!!" Then what is an excuse for my uncontrollable movements, huh?

It's always "we will represent disabilities!" Until it comes to dystonia/atethosis/chorea/etc. Until they see a REAL seizure, not when a person just shakes on the ground. Until when they see how a person can't get up to go to the toilet due to fatigue. Until they see how a person suffers from pain all over their body, although they ate BUNCH of pain killers. Until disability ISN'T aesthetically lay in bed and sit on the internet. Until they see how a person can't go out on the street without someone who could help them, so they are forced to bed rotting all the time. Just please, if you speak about disabilities, talk about REAL disabilities, not "aesthetically" laying in the bed while everyone is pampering you.

How to explain to people that there's NO NEED in restraining a person when they have a seizure, like bro, just put them on their side and count time, and if the seizure doesn't end or lasts more, call the ambulance. NOT RESTRAIN a person, because either you either them will end up with a trauma.

Just accept the fact that flash warning doesn't count as a warning when it appears on a 0,1 second with a small font in the bottom of the screen. I hate it when people can't take a minute to make a good tw.