Keratoconus - Blog Posts

PSA People with visual impairments use the internet as well

I love the fact the so many people on tumblr go out of their way to help people with hearing impairments, it really shows how progressive and thoughtful people can be. However, one thing i rarely see brought up is people with seeing impairments. In 2013 i was diagnosed with a degenerative eye disease called keratoconus, my vision is incredibly blurry and without special accommodations, i wouldn’t even be able to type this or use the internet at all. I see all the time where people will caption videos for those with hearing impairment which is absolutely amazing, but i don’t see a lot of people even acknowledging those with seeing impairments.

I know that a trend has emerged where you can post on tumblr in cursive font. I know its just fun for people, but I can’t see it all, i can’t read it and i often find myself left out of jokes or memes due to my eyesight. Another example would be those posts where there will be something odd or funny in the picture and people will post it with the caption,”don’t say anything.” Not only does this leave out people who honestly just can’t understand the joke (people with mental illnesses included) but it also leaves out the seeing impaired. I don’t like to make a huge deal out of anything, but i would greatly appreciate seeing more people being accommodating to those with seeing impairments as well.

Forensic science study session today. I’m learning about questions documents and handwriting analysis. If my eyes weren’t so terrible, I might consider this as a career. I’ve always been fascinated by handwriting.

It almost seems like non-disabled people have a harder time accepting when a chronically disabled person will never get better - and maybe even deteriorate over time, than the affected person has.

"Aww don't lose hope"

There is no hope to be had? Stop pushing your toxic positivity down my throat when I have come to terms with my situation and am grieving already.

Losing hope is what has given me an ounce of peace of mind. This is what life is now. It's not your grief, it's mine.

I have been struggling with depression lately, but it’s mostly related to my struggles with chronic illness and the lack of support I have from my medical providers. I need to start this aloud so I know that it’s situational and that it’s not my fault.

Also, I need a new therapist who can better acknowledge that it isn’t for my lack of trying. Having a neurotypical and abled therapist is draining and sometimes makes me feel like I’m being gaslit. And that’s not ok.

I’m looking for a new therapist but that takes time and more patience than I can sometimes muster with the US healthcare system and state insurance/Medicaid. Do not recommend the American healthcare experience, 0/10 rating, no stars.

I’m not okay right now and that has to be okay for now.

I feel like this about the doctors responsible for caring for each party too. Managing your own care is exhausting af.

my body is a group project and no one is doing their part correctly

I needed this today

sending love out tonight to everyone who is progressively losing their abilities, whether that's movement, ability to walk, eyesight, or hearing.

it's hard to come to terms with the fact that you can't do things that you used to be able to do. I'll be honest, it feels like you're losing control of your life. it can feel very isolating and hopeless. its scary and overwhelming, and it's so hard to deal with.

you are not less than just because you can do less. im proud of you for still being here, and i wish you ease with adjusting to new ways of life. please take care of yourself, i love you.

It’s like when people ask if In feeling better yet